This is John Anthony. He is my 9 year old running buddy. I was paired with him on 11/27/13 though the IRUN4 program.
John Anthony has several rare genetic diseases – a skin biopsy showed he has SCAD which is an inborn error of metabolism. a metabolic disorder. His current geneticist thinks he also has glycogen storage disease type O and 2 of his specialists thinks he has Mito.
He is in and out of the hospital and sick so often.
When I get them, I send him my race shirts:
Jan 11 race shirt
Nov 28 race shirt
I post on FB about ALL my runs and dedicate all my miles and races to him. (I am running a 5K in Florida tomorrow!)
So please WEAR JEANS today and pray for a cure for my John Anthony!
Happy Running!
My First 5K and More... 
I wore jeans 🙂
My neighbor’s precious little daughter has Kleefstra (I think I spelled that right) which is a very Rare genetic disorder.
LikeLike